“Starting my own business was scary, but I needed to take that risk for my son.”

“Learning that our baby, Brady, had Spinal Muscular Atrophy was the toughest moment of my life. But as it turned out, it was the start of a great journey for me and my husband Kevin. Seven years later our lives are far richer than I could have imagined in that moment.”

“SMA affects the motor nerve cells in the spinal cord, taking away the ability to walk, eat or breathe without assistance. It affects about one in 10,000 babies and is the number one genetic cause of death for infants.”

“Hearing the words ‘life span of two or three years’ about my eighteen-month-old son brought me to tears. This was not what we imagined. But with love we would get through it. We trusted in ourselves. We had to be fearless.”

“SMA doesn’t affect a person’s ability to think, learn or build relationships. My goal became to give Brady the most normal life he could possibly have.”

“We would get through it. We trusted in ourselves. We had to be fearless.”

“Our jobs made Kevin and I dependent on having a skilled caregiver at home. We were lucky to have the same wonderful nurse for two years. When she had to move on, we went through a revolving door of replacement nurses. I never knew when I might need to leave work early or miss work entirely. It was chaotic.”

“A friend suggested I start my own home-based business selling women’s fashion. It was attractive, but I wasn’t raised to be an entrepreneur. I had a steady income and liked my job. However, our family had to come first.”

“I could have changed my mind, could have quit even before I started. Instead, I worked my tail off. Some weeks my sales were low. Then things exploded.”

“Now, in nearly two years, it’s become so successful that Kevin left his job and we are truly a family business. We are home and comfortable knowing Brady is being cared for in the best way possible. We work and play together as a family. Lucas, Brady’s younger brother, loves to hide behind the clothes hanging in our boutique room. And Brady is my little marketer. He is very outgoing, telling people, ‘My mom sells clothes, find her on Facebook.’ Customers have become friends. They root for us to succeed.”

“It’s good to see the fruits of our labor. Brady finished kindergarten at the local school. It’s hard to describe what a major milestone that was. And our business success has made it possible to take family vacations – something we never could do before. We even went to Disney World and Singapore.”

“Through it all I’ve learned that no one, ever, will be a better advocate for your child than you. Be fearless for your child, no matter what the challenges are.”

Mimi stocks her store racks

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